The CCPCRN is a comprehensive and unified structure that supports Canadian pediatric and congenital cardiology investigators in the planning, designing and coordination of efficient multi-site studies to ultimately implement meaningful and significant research projects in Canada. By establishing and maintaining a national data centre to improve data standardization and facilitate secondary use of research data, the CCPCRN serves as a national hub for data analysis, sharing and dissemination.
Mission and objectives
Our mission is to advance the health of people with pediatric and congenital heart disease through enhanced collaboration in planning, designing, and conducting multicenter studies and to facilitate sharing, dissemination and meaningful knowledge translation of study results.
Our main objectives are:
The CCPCRN is led by a steering committee comprised of members from across Canada with expertise in pediatric cardiology, adult congenital cardiology, methodology, and study coordination. The Scientific Director is Dr. Frédéric Dallaire and the CCPCRN research coordinator is Virginie Carrier.
The current steering committee members are:
The steering committee ensures that research projects within the CCPCRN are of high scientific value, are feasible, and designed to improve the lives of people with pediatric and congenital heart disease. The CCPCRN assists investigators at each step of the research process, i.e., enrolment of study sites, ethics review, data collection, data analysis, research communication and data banking.