The CCPCRN is a comprehensive and unified structure that supports Canadian pediatric cardiology investigators in the planning, designing and coordination of efficient multi-site studies to ultimately implement meaningful and significant research projects in Canadian pediatric institutions. By establishing and maintaining a national data centre to improve data standardization and facilitate secondary use of research data, the CCPCRN serves as a national hub for data analysis, sharing and dissemination.
Mission and objectives
Our mission is to advance the health of children with heart disease through enhanced collaboration in planning, designing, and conducting multicenter studies and to facilitate sharing, dissemination and meaningful knowledge translation of study results.
Our main objectives are:
The CCPCRN is led by a steering committee comprised of members from across Canada with expertise in pediatric cardiology, methodology, and study coordination. The Scientific Director is Dr. Frédéric Dallaire. The CCPCRN is supported by a research coordinator.
The current steering committee members are:
The steering committee ensures that research projects within the CCPCRN are of high scientific value, are feasible, and designed to improve the lives of children with congenital heart disease and their families. The CCPCRN assists investigators at each step of the research process, i.e., enrollment of study sites, ethics review, data collection, data analysis, research communication and data banking.