The Canadian Fontan Connection is a nationwide cohort initially established in 2018 as a means to study the epidemiology, demographic trends, treatment and clinical outcomes in this small but growing population of people living with a Fontan circulation. Our greater objective is to attain a better overall understanding of this complex heart malformation and ultimately improve the long-term outlook of people living with it. The CANFON cohort is currently focused on providing a complete and comprehensive natural history of people living with a Fontan circulation in Canada, a better understanding of complications over the lifespan, and an identification of risk factors for Fontan failure and extra-cardiac complications.
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