Project summary

Several clinical data on clinical treatments have been collected over the years, but little of this data relates to the quality of life of patients who have received these treatments.

We want to assess the qulity of life of people with a congenital heart defect. Better understand what influences the quality of life makes it possible to target treatments that really improve the lives of patients.

Inclusion and exclusion criteria

  • Child between 5 and 17 years old or an adult with a congenital heart defect;
  • Parent of a child between the ages of 5 and 17 with a congenital heart defect

Place and duration

Online questionnaire lasting 10-15 minutes, to be completed once a year for 3 years.

Recruitment phase

Do you or your child suffer from a heart defect? Help us improve research by taking this short survey.

Before the study

The study will be lauched in Quebec during fall of 2021. Interested? Please tell us your name if you wish to particpate and we will contact you by email.

Contact information

Ongoing study

Link to the study:

Study progress

To date, all of these people have already participated in the study.

Thank you for giving your time to help advance research in congenital cardiology!


27 participants