What is the QUALITY study?
A lot of information on treatments for congenital heart disease has been collected over the years, but little of this data relates to the quality of life of patients who have received these treatments.
With the QUALITY study, we want to assess the quality of life of people with a congenital heart defect. A better understanding of what influences the quality of life will help to target treatments that really improve the lives of patients.
Who, where and when?
Anyone older than 5 years of age with a congenital heart defect, and any parent of a child with a congenital heart defect can participate.
You simply need to fill an online questionnaire (10-15 minutes) once a year for 3 years.