Canadian Fontan Registry: Assessing Outcomes Across The Lifespan

The Canadian Fontan Registry is a nationwide registry that initially established in 2018 as a means to study epidemiology, demographic trends, treatment and clinical outcomes in this small but growing Fontan population. Our greater objective as a whole is to attain a better overall understanding of these complex patients and ultimately improve their long-term outlook. Our registry is currently focused on providing a complete and comprehensive natural history of Fontan patients in Canada, on a better understanding of complications over the lifespan, and on the identification of risk factors for Fontan failure and extra-cardiac dysfunction.


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